Our Mission
With your help, Epilepsy Foundation New England aims to improve the lives of individuals and families impacted by epilepsy and seizures. Together, we can offer those with epilepsy help for today, and hope for tomorrow.
3.4 Million
People Living With Epilepsy In the U.S.
150,000
New Cases of Epilepsy Each Year
1 in 26
Will Develop Epilepsy In Their Lifetime
1 in 3
People With No Effective Treatment
Upcoming Events
Wednesday Webinar: SUDEP Action Day - Raising Awareness Through Personal Stories
Join us on October 15th for this Wednesday Webinar featuring Dr. Lisa Maffie and others as they share their personal stories of SUDEP (…
Seizure First Aid Training at 7PM
Epilepsy Foundation New England is providing virtual seizure first aid training monthly, teaching participants how to recognize and respond…
Wednesday Webinar: Epilepsy Clinical Trial Opportunity Sponsored by: Boston Clinical Trials
We're joined this week by Dr Green-LaRoche as we examine an available epilepsy clinical trial. Dr Green-LaRoche is a Board-…
Rhode Island Walk for Epilepsy
Join us on Sunday, October 26th! EFNE Returns to Slater Memorial Park for our annual Epilepsy Awareness Walk! Come hang out for the…
Wednesday Webinar: Finding Your Community After Diagnosed with a Rare and Complex Epilepsy
Leah Schust Myers from the FamilieSCN2A Foundation will share her family’s story and the emotional journey of receiving a rare and…
Seizure First Aid Training at 12PM
Epilepsy Foundation New England is providing virtual seizure first aid training monthly, teaching participants how to recognize and respond…
Thursday Webinar: Unlocking Possibilities: How AI Supports Adults and Children with Disabilities
Join us for an engaging webinar with Michelle Deal, Director of Learning Technologies Research and Development at Landmark College.…
42nd Annual Candlelight Gala
Join us for an evening of inspiration as we honor Dr. Jong Woo LeeFriday, November 21stFenway ParkThe 521 Overlook Room 6PM…
Seizure First Aid Training at 7PM
Epilepsy Foundation New England is providing virtual seizure first aid training monthly, teaching participants how to recognize and respond…
Wednesday Webinar: A Sibling's Perspective-Panel Discussion
Join us as we discuss the impact of epilepsy on siblings. The panelists will share their personal stories of their own struggles, triumphs…
Seizure First Aid Training at 12PM
Epilepsy Foundation New England is providing virtual seizure first aid training monthly, teaching participants how to recognize and respond…
Wednesday Webinar: Understanding and Coping with Epilepsy Stigma
In this session, Dr. Seth Margolis, Neuropsychologist at Brown University Health, will present how stigma impacts quality of life,…
We’re working to help those battling epilepsy from all corners of New England, and we’re always reaching out to those just starting their journey. That’s why we’re putting our knowledge, experience, and community to work for visitors at all stages of the battle against epilepsy.
Resources For:
Your involvement and advocacy on behalf of those battling epilepsy is crucial to our success, and we couldn't provide the services we do without your help. Whether you give a little or a lot, we always appreciate the support.
Our team of parents, patients, doctors, healthcare experts, researchers, and New Englanders all play a big role in our progress. Want to add your voice to the effort? Get involved and let’s put and end to epilepsy throughout New England, together.
Our Stories
News Stories from the foundation and stories from our friends living with epilepsy.
EFNE Announces The 2026 Grant Contest for Research & Service In Epilepsy
Epilepsy Foundation New England is pleased to announce the following grant competition and pitch contest to the Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont communities.
Gov. Janet Mills has signed a bill making Maine schools safer for students with epilepsy
FALMOUTH, Maine — This fall, students in Maine who have epilepsy or other seizure-related diagnoses will experience increased safety in schools due to a new law.
Seizure Safe Schools Hearing scheduled for July 21
BIG NEWS – the Seizure Safe Schools hearing will be heard before the Joint Committee on Education on Monday, July 21st from 11-5pm in the Gardner Auditorium. There are options to testify in-person, virtually, and by submitting written testimony.
WBZ's Levan Reid visits with EFNE in Lowell
CBS Boston WBZ's Levan Reid visited Epilepsy Foundation New England's Lowell office to discuss the upcoming hearing on July 21 at the MA State House for seizure-safe schools.Interim President and CEO, Kimberlee Schumacher, was joined by EFNE Envoy's and parents Erica Rogers Jensen and Ben Herman!Check out the video clips below:
Leadership Update from Epilepsy Foundation New England
After nine years of dedicated service at the Epilepsy Foundation of New England (EFNE), Susan Linn decided to leave her role as President and CEO. Her last day was Friday, May 23rd. Susan’s commitment to our mission has left a lasting mark on our organization and community.
2nd *UPDATE* from a 2023 Research Grantee
Epilepsy Foundation New England is happy to share the following update from Zainab Zaman, MBBS Josh Rong, B.Sc., and Darius Ebrahimi-Fakhari, M.D., Ph.D. They were awarded $75,000 in March 2024 at the 3rd Annual Blue Skies Challenge. Below is a summary of their findings since receiving the award.
