Building a Community of Hope
Group connections have been shown to be a powerful force in helping people with epilepsy and caregivers. Our SHARE (Support, Hope, Advocacy, Resources, Educate) groups offer an excellent opportunity to connect, share, and learn.
Epilepsy Foundation New England has an ever-evolving series of groups for those of all ages and capabilities. All of our groups are virtual. By doing so, we have increased the number of unique groups offered to over 35 a month. Whether you want to learn, find a support group, or be social and hang out with others, there is something for you.
All Groups will Resume the First Week of October. Days and times to be announced. Check back for registration information soon.
- Book Club
- For people living with epilepsy and dive into literature that entertains and deepens your understanding of your own journey. This book club will start weekly as we decide what to read, how to read (listen or watch), and how to access our chosen title.
- Day and Time TBD
- Registration link coming soon
- Chats with Chanda
- This group is led by the Vice President of Programs and Services, who also lives with epilepsy, and her adorable puppy Josephine, this group is for all effected by epilepsy and/or seizures.
- Day and Time TBD
- Registration link coming soon
- Cub Club (Parents of Pre-School and Elementary)
- A support and social group for parents of children with epilepsy. A dedicated space this group offers a blend of emotional support, education, and social connection providing a valuable opportunity for parents to share their experiences, gain insights, and build a supportive network with others facing similar challenges and celebrating share successes.
- Day and Time TBD
- Registration link coming soon
- EFNE Support Group
- This inclusive space is designed for everyone, whether you're newly diagnosed or have been living with epilepsy for years. Our group offers a blend of emotional support and practical advice from a diverse network of individuals who truly understand. At EFNE, you’re not alone- you're part of a supportive family that stands with you every step of the way.
- Day and Time TBD
- Registration link coming soon
- FND related seizures (sometimes diagnosed PNES)
- A sanctuary for those navigating the complexities of seizures related to Functional Neurological Disorder (FND). Our gatherings are more than just meetings; they are a vibrant exchange of strength and resilience.
- Day and Time TBD
- Registration link coming soon
- LGS Family Group
- Caring for someone living with Lennox-Gastaut Syndrome (LGS) can be both rewarding and overwhelming. This monthly support group offers a safe, understanding space for caregivers to share experiences, find encouragement, and connect with others who truly understand the challenges of LGS. Together, we'll explore resources, coping strategies, and ways to prioritize self-care while navigating the unique journey of supporting a loved one with LGS.
- Day and Time TBD
- Registration link coming soon
- Men's Group
- Living with epilepsy doesn't have to mean living small. This is your space to connect with other men who understand exactly where you’re coming from. Whether you’re dealing with everyday challenges or just need to chat with someone who gets it, we’re here for practical advice and a bit of camaraderie.
- Day and Time TBD
- Registration link coming soon
- MGH Support Group
- Connect with others living with epilepsy in this fun and supportive group for MGH patients and people experiencing seizures. Designed to foster community and friendship, the group offers a relaxed space to share experiences, engage in lighthearted activities, and build meaningful connections.
- Starting September 25th. Monthly on the 4th Thursday of each month from 7:00 - 8:30 PM. Due to holidays, Oct and Nov will the 3rd Thursday.
- Registration link coming soon
- Silver Warriors (55+)
- A fellowship for those navigating life over 55 while living with epilepsy. Here, individuals gather to weave their stories, share their trials, and forge enduring connections. Join us to provide mutual support as we travel the path of life with grace and fortitude.
- Day and Time TBD
- Registration link coming soon
- Women's Group
- A lively circle of women navigating life with epilepsy! Whether you’re seeking a dose of understanding or just some good laughs this community offers unwavering solidarity and transforms obstacles into opportunities; creating a world where every woman’s potential can truly flourish!
- Day and Time TBD
- Registration link coming soon
- Young Adult Networking
- A group for young adults in their 20s to early 30s where we build meaningful connections, explore leadership opportunities, and grow within a supportive, like-minded community. Through networking, mentorship, and engaging discussions, participants will gain confidence in navigating personal and professional growth.
- Day and Time TBD
- Registration link coming soon
- Young Leaders Network
- A supportive and engaging social group designed for youth ages 13-17 who are living with epilepsy. Through fun, facilitated activities, members have the opportunity to connect, grow, and learn from one another’s experiences. This group provides a safe space to ask questions, share triumphs and challenges, and form meaningful friendships with peers who understand.
- Day and Time TBD
- Registration link coming soon