Epilepsy Community Groups
Building a Community of Hope
Group connections have been shown to be a powerful force in helping people with epilepsy and caregivers. Our SHARE (Support, Hope, Advocacy, Resources, Educate) groups offer an excellent opportunity to connect, share, and learn.
Epilepsy Foundation New England has an ever-evolving series of groups for those of all ages and capabilities. All of our groups are virtual. By doing so, we have increased the number of unique groups offered to over 35 a month. Whether you want to learn, find a support group, or be social and hang out with others, there is something for you.
Let us connect you to the right group
Click on the group to bring you to the registration page.
Monday
PNES Group
Weekly at 5PM beginning September 30
A sanctuary for those navigating the complexities of PNES (Psychogenic Non-Epileptic Seizures) and Functional Neurological Disorder (FND). Our gatherings are more than just meetings; they are a vibrant exchange of strength and resilience.
Together, we explore coping techniques, celebrate small victories, and build meaningful connections. Join us to forge new friendships, gain insights, and rediscover hope. In this group, you’re not alone—you’re part of a compassionate community that walks alongside you every step of the way.
EFNE Support Group
Bi-Weekly at 7PM beginning September 30
This inclusive space is designed for everyone, whether you're newly diagnosed or have been living with epilepsy for years. Our group offers a blend of emotional support and practical advice from a diverse network of individuals who truly understand. At EFNE, you’re not alone—you're part of a supportive family that stands with you every step of the way.
Chats with Chanda
Monthly at 6PM beginning September 30
Led by the Vice President of Programs and Services, who also lives with epilepsy, and her adorable puppy Josephine, this group is for all effected by epilepsy and PNES! Whether you’re navigating life with epilepsy, cheering on a loved one, or a fabulous CHW alum this space is for questions, suggestions, or just want to say “Hey,”! This group is all about creating connections, spreading good vibes, and tackling challenges together. So jump in and join the conversation!
Art Group
Every 3rd Monday at 6PM beginning September 16
Building community through creativity! A nurturing space designed for adults who are seeking to explore their creative side while building meaningful connection. This group offers a unique blend of artistic expression and emotional support providing an environment where you can share your experiences and connect with others on a similar journey.
Tuesday
Parents and Caregivers of Adults living with epilepsy
Biweekly at 7PM beginning on September 10
Here, we turn the challenges of caring for our children who have grown to adulthood into opportunities for connection and celebrate the wins – big and small – with enthusiasm. Join us for a dose of support, a splash of fun, and a whole lot of shared wisdom as we tackle this adventure together!
Book Club
Weekly at 1PM beginning on October 1
Join our Book Club for people living with epilepsy and dive into literature that entertains and deepens your understanding of your own journey. This book club will start weekly as we decide what to read, how to read (listen or watch), and how to access our chosen title! Support will be offered at every step of the way! Connect, reflect, and grow with a supportive, truly understanding community.
After registering, you will receive a confirmation email containing information about joining the meeting.
Gamers Group
Weekly at 7PM beginning on October 15
Pixels for a Purpose, Leveling Up Against Epilepsy
A safe place for people with epilepsy to come together and make connections through the common ground of video games. We live in a day and age where most interactions are done digitally. Video games provide a common ground for us to get together and get to know one another. We will meet weekly using zoom and plan to host gaming sessions that are accessible to all regardless of what system you may be using at home. Video games are starting to gain recognition and use as a form of therapy and have been found to help with many different issues. From anxiety, depression, cognitive function, and so much more, it is time we use the games we play to help us heal and manage different symptoms of epilepsy.
Wednesday
Pregnancy and Epilepsy Group
Weekly at 1PM beginning September 11
A compassionate and informative community designed for women who are pregnant up to 3 months post-partum and living with epilepsy. Our group provides a supportive environment where you can share your experiences and gain valuable insights. Connect with others who understand the unique challenges and joys of navigating epilepsy during this special time.
Women’s Group
Weekly at 6PM beginning September 11
Welcome to our lively circle of women navigating life with epilepsy! Whether you’re seeking a dose of understanding or just some good laughs this community offers unwavering solidarity and transforms obstacles into opportunities; creating a world where every woman’s potential can truly flourish! Every conversation matters and every voice is heard, come join us and be part of a community where we embrace our experiences and uplift one another with warmth and positivity.
Thursday
Silver Warriors (ages 55+)
Weekly at 1PM beginning September 5th
A fellowship for those navigating life over 55 while living with epilepsy. Here, individuals gather to weave their stories, share their trials, and forge enduring connections. Join us to provide mutual support as we travel the path of life with grace and fortitude.
Cub Club (parents of kids in elementary school)
Bi-Weekly at 1PM beginning September 5th
Support and social group for parents of children with epilepsy. A dedicated space this group offers a blend of emotional support, education, and social connection providing a valuable opportunity for parents to share their experiences, gain insights, and build a supportive network with others facing similar challenges and celebrating share successes.
Men's Group
Weekly at 7PM beginning on September 12
Living with epilepsy doesn't have to mean living small. This is your space to connect with other men who understand exactly where you’re coming from. Whether you’re dealing with everyday challenges or just need to chat with someone who gets it, we’re here for practical advice and a bit of camaraderie. Let’s share experiences, tackle the ups and downs together, and find ways to keep pushing forward. Welcome to the crew!
Sunday
Maine Support Group
Monthly at 6PM beginning September 22
In true Maine fashion, we believe in supporting each other with down-to-earth, practical advice and a healthy dose of local humor. A warm and welcoming community for individuals living with epilepsy and their loved ones across the Pine Tree State. Whether you’ve recently received a diagnosis or are exploring treatment options, our group is here to help you navigate the journey with support and understanding.
