Epilepsy Envoy Program
Lead the change the epilepsy community needs through awareness and education
Launched by Epilepsy Foundation New England (EFNE) in 2023, the Epilepsy Envoy Program empowers people impacted by epilepsy to become advocates for change. What began with no participants has grown into a network of over 300 Envoys across New England, creating a strong grassroots voice for the epilepsy community.
What Do Envoys Do?
Epilepsy Envoys are individuals living with epilepsy, caregivers, family members, and allies who help raise awareness and advocate for policies that improve the lives of people affected by epilepsy. Envoys:
- Connect with legislators and policymakers
- Participate in advocacy campaigns and public hearings
- Share personal experiences to educate decision-makers
- Support initiatives that improve safety, access to care, and quality of life
- Engage their local communities in epilepsy awareness efforts
Training & Support
EFNE provides ongoing training, advocacy resources, and regular opportunities for Envoys to connect with the Advocacy Team and fellow advocates. This support helps Envoys confidently participate in legislative and community advocacy efforts across the region.
Making an Impact
Envoys have played a vital role in advancing epilepsy-related policies throughout New England. They have submitted written testimony, spoken at statehouses, met with elected officials, and helped build support for important initiatives such as seizure-safe schools and improved access to healthcare.
Looking Ahead
EFNE continues to grow and strengthen the Epilepsy Envoy Program through leadership development, advocacy training, and engagement opportunities. Together, Envoys are helping shape policies and systems that create a safer, more supportive future for people living with epilepsy.
Become an Envoy
We are inviting people living with epilepsy, their families, and care providers to become an Epilepsy Envoy and strengthen relationships within their community. In this role, you’ll inform others about epilepsy; explain what exactly epilepsy is, and discuss your journey with epilepsy from diagnosis and treatment to challenges and triumphs.
Here's What Epilepsy Envoys are Saying:
“Thank you for letting me join you today at the State House and share my story with the lawmakers. I didn’t know that I could teach them so much about epilepsy and my journey! I hope to continue sharing my story with others and make my school safer with your help, thank you, Bill!”