Financial Aid

Financial Assistance Program

Epilepsy can create a range of challenges for individuals and families that can result in short-term financial hardships. Epilepsy Foundation New England offers resources to help members in our epilepsy community in times of need, bringing financial assistance to people living with epilepsy with an emphasis on helping people maintain their health, safety, and quality of life.

Who is eligible for the program?

Anyone with a confirmed diagnosis of epilepsy and a demonstration of need is eligible for financial aid.

How does the financial assistance program work?

Epilepsy Foundation New England financial assistance program grants a one time award, with assistance ranging from $50.00 to $1000.00 to assist individuals with epilepsy during a time of need. If we are not able to fund specific needs through our own Epilepsy Foundation New England program resources, we can help to provide information and resources to identify alternative solutions.

What types of requests are covered through the program?

Financial Aid from Epilepsy Foundation New England may be able to help with the following:

  • Transportation to medical appointments
  • Critical short term needs such as emergency help with utilities or rent
  • Assistance with doctor visit copayments or medication costs
  • Medical equipment costs (for example; bedrails, assistive devices, monitoring devices)
  • Childcare, homecare, respite care
  • Advocacy
  • Education

How do I get started?

For more information on our financial aid offerings, please contact our Epilepsy Foundation New England Resource and Support Center to speak with a member of our HELP DESK team, by calling: 617-506-6041 ext 109 or by emailing @email.

You may also fill out and submit an application for financial assistance below. Please also submit a confirmation of epilepsy diagnosis by your doctor.

Which of the following do you need assistance with?

Service Provider Information

The below contact information is for the Service Provider where payment will be made to on your behalf.

Financial Planning

With the passage of the Achieving a Better Life Experience (ABLE) Act, Americans with disabilities have the opportunity to save and invest in a tax-advantaged account for short- and long-term expenses, while keeping benefits such as Supplemental Security Income and Medicaid.

For more information:

Patient Assistance Programs

Patient assistance programs are offered by some drug manufacturers to provide certain medications at a discount or for free to people who cannot afford them. All major drug companies have patient assistance programs.

How do I know if I am eligible?

Eligibility requirements are set by individual drug companies. Patient assistance programs help people of all ages, including children and some programs provide help for people receiving Medicare.

In most cases, you can receive help from a patient assistance program if:

  • you do not have prescription drug insurance that covers the medicines you need
  • you are a U.S. resident or citizen
  • you meet the income limits set by the drug company for the medicine you need

What support will I get?

If you qualify for a patient assistance program, it may provide:

  • Prescription medicine free of charge or at low cost.
  • Medicine sent to your home, your doctor's office, or your pharmacy, depending on the program.
  • You can usually get refills for up to a year before reapplying.

How do I apply?

To apply for a patient assistance program you will need to send an application to the company that makes the prescription drug that you need. If you need several drugs made by different manufacturers, you must apply to each drug company separately. Most applications have a section for you to fill out and a section for your doctor to fill out. You must also include proof of income. Most programs require you to reapply each year.

How can I get more help?

Several nonprofit organizations can help you find and apply for patient assistance programs. On these websites, you can:

  • Check if the prescription drugs you need are available from patient assistance programs
  • Identify the drug manufacturers
  • Review your eligibility
  • Print applications and instructions

 

Nonprofit organizations who can provide general help understanding and accessing patient assistance programs include:

NeedyMeds.org

NeedyMeds.org is a private nonprofit web site that lets you search for patient assistance programs by drug name. For each drug on the list, NeedyMeds.org gives the program name, phone number, application link, eligibility guidelines, application requirements, and program details.

For information go to: https://www.needymeds.org

Partnership for Prescription Assistance (PPA)

The Partnership for Prescription Assistance (PPA) is a joint effort of American drug companies, medical organizations, and government agencies to inform patients about patient assistance programs. The PPA offers a toll-free helpline as well as an online application wizard and program information.

The toll-free helpline is 1-888-477-2669 or look up www.pparx.org.

PatientAssistance.com

This is a free resource designed to help connect patients who cannot afford their prescription medications with patient assistance programs.

For information go to: https://patientassistance.com.

RxAssist

This is a website with information, news, and a database that are all designed to help you find out about ways to get affordable or free medications. The database includes information on pharmaceutical companies’ patient assistance programs or programs that provide free medication to low-income patients. RxAssist was created by Volunteers in Health Care, a national, nonprofit resource center for health care programs working with the uninsured.

Email: @email

Listing of Patient Assistance Programs

Abbott Patient Assistance
www.Depakote.com or www.abbviepaf.org
(800) 222-6885
Medications covered: Depakote and Depakote ER

Cephalon Cares Foundation Patient Assistance Program
www.cephaloncares.com
(877) 237-4881
Medication covered: Gabitril

Eisai Primary Care Assistance Program
www.eisaireimbursement.com
(866) 694-2550 or (855)-347-2448
Medication covered: Banzel

GlaxoSmithKline Bridges to Access
www.BridgesToAccess.com
(866) 728-4368
Medications covered: Lamictal, Lamictal XR and Potiga

Johnson & Johnson Patient Assistance Foundation
www.jjpaf.org or www.access2wellness.com
(800) 652-6227
Medication covered: Topamax

Lundbeck Onfi Support Center
www.ONFI.com
(855) 345-6634
Medication covered: Onfi

Lundbeck’s SHARE Call Center
www.lundbeckshare.com
(888) 457-4273
Medication covered: Sabril

Meda Patient Assistance Program
www.felbatol.com
(800) 593-7923
Medication covered: Felbatol

Novartis Patient Assistance Foundation
www.rxassist.org
1-(800) 277-2254
Medications covered: Tegretol, Tegretol XR and Trileptal

Pfizer, Inc.
www.dilantin.com or www.pfizer.com
(800) 972-9226
Medication covered: $4 co-pay card Dilantin-extended phenytoin sodium caps

Pfizer Helpful Answers
www.pfizerpathways.com
(866) 706-2400
Medications covered: Celontin, Dilantin, Lyrica, Neurontin, Zarontin

Questcor Pharmaceuticals Acthar Support & Access Program (ASAP)
www.questcor.com
1-(888) 435-2284
Medication covered: Acthar Gel (ACTH)

Recordati Rare Diseases
www.recordatirarediseases.com
(866) 209-7604
Medication covered: Peganone

RxHope
www.rxhope.com
Shire Cares Patient Assistance/Support
www.rxassist.org
(888) 227-3755
Medication covered: Carbatrol

UCB Patient Assistance Program
www.rxassist.org
(866) 395-8366
Medications covered: Vimpat

Valeant Patient Assistance Program
www.rxassist.org
(800) 511-2120 or (866) 268-7325
Medications covered: Diastat AccuDial, Mysoline

Vagal Nerve Stimulation - VNS Therapy Access
www.cyberonics.com
(877) 610-1180

Please check your state’s 2-1-1 info line for state-specific drug assistance programs that you may qualify for.

Service Dogs

Whether it’s by acting as a service animal in a public space or acting as a “Seizure Response Dog” for those who experience seizures, service dogs can be trained to support individuals living with epilepsy in a variety of ways.

Dogs that assist people living with epilepsy are being trained under programs named Seizure Response Dogs, Seizure Assistance Dogs and Seizure Alert Dogs. The following organizations train the dogs under their own guidelines and have differing criteria for eligibility for a service animal. The Epilepsy Foundation New England does not endorse any of these organizations or their services.

Paws Ability Unleashed
www.pawsabilitysunleashed.org
“Seizure Response Dog” program is specifically for people with seizures.
1410 Versailles Road
Suite 5/6
Frankfort, KY 40601
(866) 262-7010

4 Paws for Ability, Inc
www.4pawsforability.org
Dogs trained for children and young adults with epilepsy.
253 Dayton Avenue
Xenia, OH 45385 (937) 374-0385
Training Center:
207 Dayton Avenue
Xenia, Ohio 45385
(937) 376-2781

PAWS With a Cause
www.pawswithacause.org
Seizure response dogs, social support dogs. Services parts of MA, all of RI, Southern ME, Southern NH. 4646 South Division
Wayland, MI 49348
(800) 253-7297

Domesti-Pups
www.domesti-pups.org
Service dogs trained for people with disabilities.
P.O. Box 21725
Lincoln, NE 68502
(402) 465-4201; or (866) 515-7877

Golden Opportunities for Independence
gofidog.org
Service dogs and mentors for people with disabilities.
323 High StreetWalpole, MA 02081
508-505-5282

Canine Assistants
www.canineassistants.org
Service dogs for adults/children with seizures.
3160 Francis Road
Milton, Georgia 30004
(770) 664-7178; or (800) 771-7221

Maine Canine Assistants Consultant:

Kerrie Doyle (207) 608-5296 @email

Resources for Service Dog Financial Assistance

Julie Hutchinson, Service Dog Grant Applications: @email

Josh Provides, Epilepsy Assistance Foundation: https://joshprovides.org