Events

A Caregiver's Journey: From Resilience to Resources

This conference is designed to support caregivers of individuals living with epilepsy, LGS, Dravet, and related conditions, offering valuable education, practical tools, and emotional support.

Key Topics and Sessions:

Overview of LGS/Dravet and Fintepla
Gain foundational knowledge about LGS and Dravet syndromes, including treatment options

Managing Seizures at Home
Practical guidance on seizure safety, managing risks, and the use of seizure alert devices to enhance home safety.

Preventing Caregiver Burnout
Strategies to reduce caregiver stress and promote well-being, including nutrition, exercise, and stress management techniques for both caregivers and their loved ones.

SUDEP Panel
A moderated panel discussing SUDEP (Sudden Unexpected Death in Epilepsy) with insights for caregivers.

Breakout Sessions:
Attendees will have the opportunity to choose from two sets of breakout sessions tailored to different topics:

Stigma (Seth Margolis confirmed)

Community Health Workers

Coordinated Care

Process for Special Schools & Transition to College

Life Planning: Financial Planning & Group Homes
Guardianship

This conference aims to empower caregivers with knowledge, resources, and community connections to navigate the challenges of caregiving with resilience.