You don’t have to navigate epilepsy alone.
Free, one-on-one support for people living with epilepsy and their families.
Living with epilepsy can create questions and challenges that go beyond medical care. You may need help finding resources, navigating healthcare, accessing transportation, managing financial concerns, or connecting with others who understand what you are going through.
Our Community Health Workers (CHWs) are here to help.
Think of it as having someone in your corner.
EFNE’s Care Management Program connects people with epilepsy and their families with a Community Health Worker who will listen, understand your needs, and help you find the right support.
Care Management is about more than connecting you with resources. It is about building a relationship and creating a sense of community for you and your family. Your CHW will take the time to learn about you—not just your epilepsy—including what matters to you, what you enjoy, and what challenges you may be facing.
How it Works
1. Connect
Complete our short referral form or ask an EFNE Community Health Worker about Care Management.
2. Talk
Your CHW will listen, learn what's important to you, and understand the challenges you're facing.
3. Get support
Together, you'll identify goals and connect with the resources and services that can help.
Who is this for?
Care Management is for you if…
You or your child has epilepsy or seizures
You're struggling to access healthcare
Transportation is making appointments difficult
You're worried about paying for medications or other necessities
Epilepsy is affecting work or school
You need help finding community resources
You aren't sure what support is available
You simply don't know where to start
How can a Community Health Worker help me?
Your CHW can help you:
- Find epilepsy education and seizure first aid resources
- Connect with support groups and others in the epilepsy community
- Find transportation and financial assistance
- Access medication and healthcare resources
- Explore employment and educational resources
- Connect with community resources
- Find programs and services offered by EFNE
Your CHW will work with you to identify what is most important to you and help you set goals based on your needs.
Where does Care Management take place?
Our primary way of providing Care Management is through Epilepsy Resource Rooms (ERRs) in hospitals.
An EFNE Community Health Worker is assigned to an Epilepsy Resource Room at a hospital. The CHW works alongside the medical team to identify people with epilepsy who may benefit from additional support.
The CHW may meet with you during your clinic visit or reach out to you after your appointment to introduce themselves and learn if you are interested in additional support.
You always have a choice. A CHW can explain the program and available resources, and you can decide whether Care Management is right for you.
Do I need to have a specific need to work with a CHW?
No. People with epilepsy may connect with a CHW for many different reasons. You may have questions about resources, need help navigating a challenge, or simply want to learn more about the support available to you.
What if my hospital doesn't have an EFNE Community Health Worker?
You can still access Care Management. EFNE provides Care Management services to people with epilepsy and their families throughout Massachusetts, Maine, New Hampshire, Vermont, and Rhode Island.
If your hospital does not have an EFNE Community Health Worker, you can complete our Referral Form to connect with our team and learn more about available support.
How do I connect with a CHW?
If you would like to learn more about Care Management or connect with a Community Health Worker, click the link below:
Trusted by the Epilepsy Community
25,000 people served in 2025
5 New England states
1:1 personalized support
7,000+ epilepsy-relevant community resources
Providers reported that EFNE services were highly valued and essential, with 78% of respondents from CNDC and 82% at Mass General Brigham saying EFNE services were helpful or very helpful in improving care for patients with epilepsy.