Organization Summary

Welcome!

Welcome to Epilepsy Foundation New England (EFNE). No matter where you are on your journey with epilepsy, EFNE is your partner. From parents learning their child has epilepsy to adults having their first seizure – we are your guide, providing you with the right resources, programs, and client care for your needs. From people living with uncontrolled seizures who need daily support to improve their quality of life to people who have achieved seizure freedom – EFNE will empower you to live your fullest life and provide opportunities to actively participate in our community.

Our staff pride ourselves on meeting you where you are on your epilepsy journey – we provide 1:1 client care management and quality programming, seek your help to advocate for our community, provide volunteer opportunities and/or seek your support to fund our work. Whether ensuring people do not feel alone on their journey or opening the door to meaningful friendships or simply giving back – together, we are a better community. 

As the work of the Foundation progresses, we are not just measuring the impact we’ve had on the numbers; we are measuring the impact we’ve had on lives - on you, on us, on each other.

We're proud to share with you our annual report, which provides an understanding of the breadth and depth of EFNE’s impact in our community. Read our 2025 Annual Report

We invite you to explore what we have to offer.


Client Care Management

EFNE partners with the world-class committed and caring epilepsy health care provider community in New England to offer services that support Quality of Life for people living with epilepsy. We employ a 1:1 client care model is a 1:1 relationship between EFNE Community Health Workers (CHWs)  and our clients. 

Programs & Education 

EFNE provides numerous programs, including camps, share groups, seizure first aid, and school nursing/personnel seizure aid. EFNE has a MA state-accredited Community Health Worker (CHW) certification program, which educates and trains CHWs for our region’s healthcare workforce. EFNE’s community outreach effort affords access to over 1,500 community resources and programs

Advocacy & Public Policy

EFNE’s  Advocacy & Policy Team works to advance policies that improve the lives of people living with epilepsy and their families in Washington, DC and across the five states we serve: Massachusetts, New Hampshire, Vermont, Maine, and Rhode Island. Our work encompasses both epilepsy-specific legislation as well as broader policies that impact people with disabilities, including access to health care, education, employment, and quality of life. 

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Investing in Research

EFNE is proud to directly support epilepsy research. Our annual Blue Skies Challenge offers researchers significant grants in two categories: Innovations in Diagnosis or Treatment and Innovations to Improve Quality of Life. 

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